October 26, 2018Updated February 25, 2020
Medicaid Coverage for Former Foster Youth Up to Age 26
Children may enter foster care due to incidents of abuse,
neglect, or some other reason that prevents them from
remaining with their families. During FY2016FY2018, some
687,000400 children spent at least a day in foster care. Of the
250,000 children who exited foster care that year, more
than 20,500nearly
18,000 emancipated at 18 (or an older age, up to 21, if
states extend care). In this context, emancipation means
reaching the state legal age of adulthood and not being
reunified with family or placed in a new permanent family.
Title IV-E program, states must inform foster youth within
90 days prior to emancipation about their future options for
health care. Title IV-E also directs states to provide these
youth with health information and, as of early 2018, official
documentation that they were previously in care. Such
documentation may be necessary to determine eligibility for
some former foster youth who later apply for Medicaid.
The Patient Protection and Affordable Care Act (ACA, as
amended; P.L. 111-148) required states, as of January 1,
2014, to provide Medicaid coverage to youth who have
emancipated until their 26th birthday. The U.S. Department
of Health and Human Services’ (HHS’) Centers for
Medicare & Medicaid (CMS), which administers the
Medicaid program, issued a proposed rule in January 2013
and a final rule in November 2016 to specify additional
parameters about youths’ coverage under the program.
Young people who age out of foster care can have
significant health needs. In a sample of former foster youth
at age 21 in the Midwest, 11% had a health condition or
disability that limited their daily activity, compared to 5%
of their same-age peers in the general population. The
Medicaid pathway for former foster youth is intended to
provide necessary health supports in the years immediately
after leaving foster care. It parallels another ACA
requirement that health insurance companies provide
coverage of children up to age 26 under their parents’
private health care plans.
The Medicaid and Foster Care Programs
Medicaid, authorized in Title XIX of the Social Security
Act (SSA), is a federal-state program that jointly finances
medical and related services to a diverse low-income
population. To be eligible for Medicaid, individuals must
meet both categorical (e.g., elderly, children, or pregnant
women) and financial (e.g., income, assets) criteria in
addition to requirements regarding residency, immigration
status, and U.S. citizenship. For some eligibility groups or
pathways, state coverage is mandatory, while for others it is
optional. States and territories (states) must submit a state
plan to the federal government to describe how they will
carry out their Medicaid programs within the federal
statute’s framework. States that wish to make changes
beyond what the law permits may seek CMS approval to
waive certain statutory requirements to conduct research
and demonstration waivers under Section 1115 of the SSA.
The Foster Care, Prevention, and Permanency program,
authorized in Title IV-E of the SSA, is a federal-state
program that, among other things, jointly finances foster
care for children who a state determines cannot safely
remain in their homes and who meet federal eligibility rules
related to being removed from a low-income household and
other factors. The program also provides some support for
services to assist older children in foster care, and those
who age out, in making a successful transition to adulthood.
The Administration for Children and Families (ACF) at
HHS administers the Title IV-E program.
While in foster care, nearly all children are eligible for
Medicaid under mandatory eligibility pathways. This means
that states must provide coverage because these children
receive assistance under the Title IV-E foster care program,
are disabled, or meet other eligibility criteria. Under the
Title IV-E program, states must inform foster youth within
90 days prior to emancipation about their future options for
health care. Title IV-E also directs states to provide these
youth with health information and, as of early 2018, official
documentation that they were previously in care. Such
documentation may be necessary to determine eligibility for
some former foster youth who later apply for Medicaid.
Medicaid for Emancipating Youth
Young people who age out of foster care can have
significant health needs. For example, a 2015 national
survey of 21-year-olds who had been in foster care as
teenagers found that nearly one-fourth had been referred
for substance abuse assessment or counseling. The
Medicaid pathway for former foster youth is intended to
provide necessary health supports in the years immediately
after leaving foster care. It parallels another ACA
requirement that health insurance companies provide
coverage of children up to age 26 under their parents’
private health care plans.
Medicaid for Emancipating Youth
Medicaid regulation requires states to determine whether
current beneficiaries, including youth emancipating from
foster care, are eligible for other Medicaid pathways to
avoid gaps in coverage. Upon emancipating from foster
care, youth may be eligible for mandatory Medicaid
pathways available to adults (e.g., pregnancy or disability
pathways). If determined eligible, they are to be enrolled
via these other pathways (with the exception of a pathway
for non-elderly low-income adults that was established
under the ACA). However, if these young people do not
qualify for other mandatory pathways, or states do not have
sufficient information to determine such eligibility, they are
to be enrolled in the mandatory Medicaid pathway for
former foster youth without interruption in coverage.
To be eligible for the former foster youth pathway,
individuals must (1) be under age 26,; (2) have been “in
foster care under the responsibility of the State” upon
reaching age 18 (or any age up to 21 if the state extends
federal foster care to that age); and (3) have been enrolled
in Medicaid “while in such foster care.” Unlike most
eligibility pathways, the former foster youth pathway is
available to eligible youth regardless of income.
Based on thea 2018 national survey of former foster youth who
were age 21 in FY2015FY2018, approximately 7064% had Medicaid,
1518% had some other health insurance, and 1519% had neither.
Continuity of Medicaid Coverage
In the November 2016 final rule, CMS recommended that
states use automated transition of eligible individuals to the
former foster youth pathway if they are not eligible for
other mandatory eligibility pathways. However, some
former foster youth, such as those who emancipated before
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Medicaid Coverage for Former Foster Youth Up to Age 26
January 1, 2014, may need to apply for coverage under this
pathway. According to CMS, states may allow these youth
to attest to their eligibility. States that do not accept selfattestation must use electronic records that show a youth’s
foster care history and receipt of Medicaid while in care (if
available). If electronic records are not available or are
limited, states can require that applicants provide
documentation showing that they had been in foster care.
Further, if a state cannot verify whether a youth remains a
state resident it may require a former foster youth to selfattest or document his or her state residency.
guidance to states on best practices for removing barriers
and ensuring timely coverage under this pathway, and on
conducting related outreach and raising awareness among
eligible youth. CMS conducted a state training addressing
these components on September 9, 2019.
Figure 1. Medicaid Coverage for Former Foster Youth
Who Move to Another State Following Emancipation
Optional Coverage for Certain Youth
The Medicaid regulation requires emancipated youth to
have had coverage at the time they left care at age 18 (or
older, up to age 21). However, the rule gives states the
option of providing coverage to youth who emancipated
from foster care and received Medicaid (1) at some point
while in foster care but not at the time they aged out; or (2)
while in the custody of the state child welfare agency, but
were placed in another state and were enrolled in that
state’s Medicaid program while in foster care or when they
emancipated. According to CMS, this option is made
available in response to the possible interpretation of the
law that youth are not necessarily required to have had
Medicaid coverage at the time they emancipated. CMS
stated that this could apply to foster youth who reached age
18 while they were on a runaway episode and whose
Medicaid coverage had lapsed.
Youth Who Move to Another State
As noted, the ACA specified that individuals were eligible
for the former foster youth pathway if they were “in foster
care under the responsibility of the State” upon reaching
age 18 or an older age, up to 21, in states that extend care.
In its January 2013 proposed rule, CMS interpreted the
statute to mean that states were not required to provide
coverage to youth who were enrolled in Medicaid and aged
out in another state, but could do so. In separate guidance in
2013, CMS indicated that it would approve state plan
amendments that offered coverage to out-of-state youth,
pending publication of a final rule. Figure 1 shows the 14
states that received approval following the proposed rule.
In its November 2016 final rule, however, CMS reversed its
earlier interpretation. The rule explained that because the
statute provided eligibility to former foster youth who had
emancipated in the state—not a state or any state—it could
not be applied by a state to youth who emancipated in a
different state. Accordingly, states could no longer cover
these youth via state plan authority; however, they were
encouraged to seek CMS approval under the Section 1115
waivers. Based on CRS review of the CMS website as of
mid-October 2018, 8 of the 14 states received such waiver
approval to provide this coverage. (See Figure 1.)According to CMS, 10 states have received such
waiver approval to provide this coverage as of September
2019. (See Figure 1.) Except for Delaware, these states had
used state plan authority to provide this coverage
previously. Five other states—Georgia, Louisiana,
Michigan, Montana, and New York—had prior state plan
authority.
The Substance Use-Disorder Prevention that Promotes
Opioid Recovery and Treatment for Patients and
Communities Act (P.L. 115-271), enacted on October 24,
2018, amended the Medicaid statute on the former foster
youth pathway. It will permit states, as of January 2023, to
use state plan authority for providing coverage to former
foster youth who move across state lines. The law directs
HHS, within one year of the law’s enactment, to issue
Source: Based on CRS review of HHS and CMS websitesHHS, CMS, Medicaid and CHIP Learning Collaborative
presentation, September 9, 2019.
Medicaid Benefits
In general, the rules for Medicaid benefit coverage for
former foster youth under age 21 are the same as for nondisabled children. For those over age 21, benefit coverage is
the same as for non-disabled adults. Former foster youth
generally receive services through what is sometimes called
traditional Medicaid—an array of required or optional
medical assistance items and services listed in statute.
However, states may also furnish Medicaid through
alternative benefit plans (ABPs). Under ABPs, states may
provide a benefit that is defined by a reference to an overall
coverage benchmark, rather than a list of discrete items and
services. Like traditional Medicaid, ABPs must include
services under Medicaid’s early and periodic screening,
diagnostic and treatment (EPSDT) benefit for youth under
age 21. ABPs can be targeted to certain Medicaid groups,
including former foster youth. However, states may not
require such individuals to receive Medicaid via ABPs.
Cost Sharing
States may require certain enrollees, including adult former
foster youth, to share in the cost of Medicaid services. Cost
sharing requirements for program participation fees (e.g.,
premiums) and point-of-service cost sharing (e.g., copays,
coinsurance) may vary by income, and certain services
(e.g., emergency services, family planning services and
supplies) are exempt. Maximum allowable amounts may
differ for individuals with annual income (1) at or below the
federal poverty level (FPL) (i.e., $12,140760 for an individual
in 20182020), (2) from 100%-150% of FPL, and (3) above 150%
of FPL. However, in aggregate, all types of cost sharing
must not exceed 5% of household monthly or quarterly
income, as chosen by the state.
Adrienne L. Fernandes-Alcantara, Specialist in Social
Policy
Evelyne P. Baumrucker, Specialist in Health Care
Financing
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IF11010
Medicaid Coverage for Former Foster Youth Up to Age 26
IF11010
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