Long-Term Care (LTC): Financing Overview 
and Issues for Congress 
Julie Stone 
Specialist in Health Care Financing 
February 1, 2010 
Congressional Research Service
7-5700 
www.crs.gov 
R40718 
CRS Report for Congress
P
  repared for Members and Committees of Congress        
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Summary 
Most long-term care (LTC) received by people with disabilities and/or other limitations in their 
capacity for self-care due to a physical, cognitive, or mental disability or condition is provided by 
informal providers—family and friends—who give care without compensation. Formal LTC 
services in the United States, however, are financed by a wide variety of public and private 
sources. The largest public payer of LTC in the country is, by far, the Medicaid program, paying 
for almost half (48.5%) of all formal LTC services. Medicaid is intended to provide a safety net 
for those who cannot afford to pay for LTC services. Because Medicaid is administered and 
partially financed by each state, there is wide variation in eligibility and benefits across the 
nation. Medicare and other federal and state programs finance an additional quarter (24.8%) of 
formal LTC services. Each program has distinct eligibility criteria and, thus, distinct target 
populations, and each covers a different set of services. Multiple programs may also serve 
persons with long-term care needs simultaneously. 
Private financing, including out-of-pocket spending, pays for just over a quarter (26.8%) of 
formal LTC services. Of this, about 7% of LTC services are financed by private LTC insurance 
(LTCI). These policies are intended to provide financial protection to individuals and families to 
insure against the potentially high cost of care. 
People who do not have access to private LTC insurance and who are not immediately eligible for 
Medicaid or other public programs must pay for LTC services out-of-pocket, rely on family and 
friends, or forgo care. The out-of-pocket costs of LTC services can be catastrophic for some 
individuals and families, often exceeding annual income and, in some cases, personal savings and 
assets. 
Concern about the way LTC is financed and delivered has drawn congressional attention for 
several decades. Exacerbating this concern is the potential for increased demand on the nation’s 
LTC system as a result of the aging U.S. population. At the same time, disability among the 
current cohorts of working-age Americans has been increasing over the past few decades. 
Congress continues to be concerned about the following issues: (1) barriers to public and private 
coverage; (2) strains on federal and state Medicaid budgets; (3) coordination of care across 
Medicaid, Medicare, and other public programs, as well as across provider settings; (4) spending 
on institutional care versus home and community-based services; (5) challenges facing consumers 
of LTC; (6) the supply and quality of the LTC workforce; (7) access to affordable housing; and 
(8) the quality of publicly funded LTC services. 
This report provides an overview of LTC and an explanation of the nation’s complex financing 
system of public and private payers. It also describes some of the major challenges facing 
Congress as it contemplates LTC reform and whether and how to include LTC in health reform 
legislation. 
 
 
Congressional Research Service 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Contents 
Introduction ................................................................................................................................ 1 
What Is LTC?.............................................................................................................................. 2 
Sources of Financing for LTC ..................................................................................................... 3 
Public Sources of Financing for LTC..................................................................................... 4 
Medicaid......................................................................................................................... 5 
Medicare....................................................................................................................... 10 
Other Public Payers....................................................................................................... 11 
Private Sources of Financing for LTC.................................................................................. 13 
Private LTC Insurance................................................................................................... 13 
Out-of-Pocket Spending................................................................................................ 14 
Other Private Funds ...................................................................................................... 15 
LTC Issues for Congress ........................................................................................................... 15 
Barriers to Public and Private Coverage .............................................................................. 15 
Strain on Federal, State, and Local Budgets ......................................................................... 16 
Better Coordinating Care Across Medicaid, Medicare, and Other Public Programs .............. 16 
Better Coordinating Care Across Provider Settings.............................................................. 17 
Medicaid Spending Still Dominated by Institutional Care.................................................... 17 
Navigating the Current LTC System Is Complex ................................................................. 18 
Limited Supply of the LTC Workforce................................................................................. 18 
Limited Access to Affordable Housing ................................................................................ 18 
Guaranteeing Quality Can Be Challenging .......................................................................... 18 
 
Figures 
Figure 1. LTC Spending, by Payer............................................................................................... 4 
 
Tables 
Table 1. Other Public Programs for LTC Services...................................................................... 11 
 
Contacts 
Author Contact Information ...................................................................................................... 19 
Acknowledgments .................................................................................................................... 19 
 
Congressional Research Service 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Introduction 
As older Americans live longer than previous generations, the probability of their becoming 
disabled and requiring long-term care (LTC) services at some point in their lifetime may 
increase.1 At the same time, disability among the current cohorts of working-age Americans, who 
will soon be the future elderly, has been increasing over the past few decades. Some research has 
shown that people under 65 are experiencing fewer disability-free years.2 
Most care received by people with disabilities is delivered by informal providers—family and 
friends—who give care without compensation. Formal LTC services—those services for which 
payment is made—in the United States, however, are financed by a wide variety of public and 
private sources. The largest public payer of LTC in the country is, by far, the Medicaid program. 
Medicaid is intended to provide a safety net for those who cannot afford to pay for LTC services. 
Because states are given flexibility in how they administer Medicaid, there is wide variation in 
eligibility and benefits across the nation. Medicare and other federal and state programs also 
finance formal LTC services but on a much smaller scale. Each program has distinct eligibility 
criteria and, thus, target populations, and each covers a different set of services. Multiple 
programs may also serve persons with long-term care needs simultaneously. 
Private LTC insurance also pays for some formal LTC services. LTC insurance policies are 
intended to provide financial protection to individuals and families to insure against the 
potentially high cost of care. However, the share of the older population with private LTC 
insurance policies is relatively small, and most younger persons with disabilities do not hold such 
policies. 
People who do not have access to private LTC insurance and who are not immediately eligible for 
Medicaid or other public programs must pay for LTC services out-of-pocket, rely on family and 
friends, or forgo care. The cost of LTC services can be catastrophic for individuals and families, 
with expenses often exceeding annual income and, in some cases, overall wealth or assets. Such a 
large personal financial liability can leave individuals with disabilities and their families 
impoverished. 
In the past, Congress has considered a variety of reform options to the nation’s LTC financing 
system. Some of the methods Congress has considered have been to expand access to long-term 
care services delivered in home and community-based settings; to better coordinate care delivered 
across long-term care and acute care settings; to minimize existing barriers to public and private 
coverage of LTC; to help individuals better navigate the array of federal, state, and local public 
programs; to increase the supply of adequately trained LTC workers; and to better ensure that 
services delivered are of high quality. 
The House and Senate health reform proposals (H.R. 3692 and H.R. 3590, respectively), debated 
in the first session of the 111th Congress, include provisions that would expand access to coverage 
                                                
1 Peter Kemper, Harriet L. Komisar, and Lisa Alecxih, Long-Term Care Over An Uncertain Future: What Can Current 
Retirees Expect? Inquiry 42:335-350. Winter 2005-2006. http://www.inquiryjournal.org 
2 Jay Bhattacharya, Kavita Choudhry, and Darius Lakdawalla. Chronic Disease and Trends in Severe Disability Among 
Working-Age Populations. In Workshop in Disability in America, A New Look. Summary and Background Papers. 
Institute of Medicine. Washington, DC, 2005. Darius Lakdawalla, Dana P. Goldman, Jay Bhattacharya, Michael Hurd, 
Geoffrey Joyce, and Constantijn Panis, “Forecasting the Nursing Home Population,” Medical Care, v. 41, no. 1, 2003. 
Congressional Research Service 
1 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
of formal LTC services. Included in both H.R. 3692 and H.R. 3590 are provisions to establish a 
national voluntary LTC insurance program, referred to as the Community Living Assistance 
Services and Supports Program (CLASS program). The CLASS program would provide a cash 
benefit to eligible enrollees (who have paid premiums for at least five years) with LTC needs to 
purchase community living assistance services and supports, such as home modifications, 
assistive technology, accessible transportation, and homemaker services, among others. Other 
provisions in the Senate bill would expand Medicaid’s coverage of persons with LTC needs and, 
among other things, provide new options to states to deliver LTC services to certain persons age 
65 and over and persons with disabilities. These proposals continue to be under consideration by 
both houses of Congress. 
What Is LTC? 
LTC refers to a broad range of health and social services needed by people with a limited capacity 
for self-care due to a physical, cognitive, or mental disability or condition that results in 
functional impairment and dependence on others for an extended period of time. The need for 
LTC services and supports is generally measured by the presence of functional limitations in the 
ability to perform basic personal care activities, known as activities of daily living (ADLs), or by 
the need for supervision or guidance with ADLs. ADLs generally refer to activities such as eating, 
bathing, using the toilet, dressing, walking across a small room, and transferring (getting in or out 
of a bed or chair). Instrumental activities of daily living (IADLs) are also used as a measure of a 
person’s need for LTC. These activities are necessary for an individual’s ability to live 
independently in the community and include activities such as preparing meals, managing money, 
shopping for groceries or personal items, performing housework, using a telephone, doing 
laundry, getting around outside the home, and taking medications. Some programs that cover LTC 
services for people with mental retardation or developmental disabilities, such as Medicaid, also 
define eligibility for certain groups based on a specific diagnosis, sometimes in combination with 
other factors such as functional limitations. 
Formal services to assist people with LTC needs may be provided either in an institutional-based 
setting, such as a nursing home, or in a community-based setting, such as a private home, group 
home, or assisted living facility. In addition to room and board, institutional settings provide 24-
hour supervision, personal care to assist with ADLs and IADLs, meal deliveries and nutritional 
counseling, recreational services, access to nursing and physician services, and habilitation,3 
among others. Examples of formal home and community-based services include home health and 
personal care aide, case management, private-duty nursing, adult day care, respite care, and 
transportation, among others. 
The population with LTC needs is diverse and includes people of all ages—for example, the 
elderly with chronic conditions or illnesses, such as severe cardiovascular disease or Alzheimer’s 
disease; children born with disabling conditions, such as mental retardation or cerebral palsy; and 
working-age adults with inherited or acquired disabling conditions, such as mental illness or 
traumatic brain injuries. 
                                                
3 Habilitation refers to services designed to assist individuals in acquiring, retaining, and improving the self-help, 
socialization, and adaptive skills necessary to reside successfully in home and community-based settings. 
Congressional Research Service 
2 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Regardless of age, people receiving LTC assistance are more likely to receive care at home or in 
other community settings rather than in an institution. Of the 9.4 million adults receiving LTC 
assistance, more than three-quarters (7.2 million) reside at home or in other community settings. 
Among those adults receiving LTC assistance and living in the community, just over half are age 
65 and older, and the remainder (47%) are between ages 18 to 64. Another 2.2 million reside in 
institutional-based settings.4 
Sources of Financing for LTC 
Total U.S. spending on formal LTC is a significant component of all health care spending. Of the 
$2.2 trillion spent on personal health care in 2007, as reported by CMS, an estimated $233.4 
billion, or 10.6%, was spent on LTC services.5 This spending included payment for services in 
institutional settings—primarily nursing homes and intermediate care facilities for people with 
mental retardation—home health, and a wide range of home and community-based services, such 
as home care, personal care, and adult day care.6 
Formal LTC services in the United States are paid for by a wide variety of public and private 
sources. Almost three-quarters of LTC spending is paid for by public sources, including 
Medicaid, Medicare, and other public programs, such as the Department of Veteran Affairs. In 
2007, Medicaid paid for nearly half (48.5%) of LTC expenditures.7 Medicare funded the next 
largest share of spending, or 22.4% of LTC expenditures in 2007. Other public sources, such as 
veterans and state-funded programs, paid for 2.4% of the total.8 
Individuals who do not qualify for public programs or who have not enrolled must pay for LTC 
directly out-of-pocket or purchase private LTC insurance. In 2007, out-of-pocket spending by 
individuals and families for nursing home and home health care represented the largest source of 
private financing, making up almost 18% ($41.3 billion) of total LTC spending. Private LTC 
insurance is also available to finance these costs; about 7% ($15.3 billion) of LTC spending was 
paid by LTC insurance in 2007. Other private payers, including charitable organizations, paid 
2.5% ($5.7 billion). See Figure 1 for a summary of spending by payer. 
                                                
4 CRS calculations based on data from the National Long-Term Care Survey (1999), the National Health Interview 
Survey, Disability Supplement (1994), and Spector and colleagues, The Characteristics of Long-Term Care Users, 
AHRQ Publication No. 00-0049, September 2000. For additional information, see CRS Report RL33919, Long-Term 
Care: Consumers, Providers, Payers, and Programs, by Carol O'Shaughnessy et al. 
5 CRS estimates based on National Health Expenditures by Type of Service and Source of Funds: Calendar Years 1960-
2007. 
6 Ibid. 
7 This amount does not include all of the program’s LTC expenditures, such as the state plan personal care services and 
the section 1915(i) home and community-based state plan option. 
8 This number, however, does not include spending on LTC from all other public sources, as it includes only that 
spending on nursing facilities and home health agencies. The range of home and community-based services paid for 
through grant funds, state-only funds, and other public programs is not included. 
Congressional Research Service 
3 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Figure 1. LTC Spending, by Payer 
CY 2007 
Other Private 
Other Public 
$5.7 billion 
$5.7 billion
(2.5%)
Private 
(2.4%)
Insurance
$15.3 billion
(6.6%)
Total 
$233.4 billion
Out-of-Pocket
$41.3 billion
(17.7%)
Medicaid 
$113.1 billion
(48.5%)
Medicare
$52.2 billion
(22.4%)
 
Source: CRS estimates based on the calendar year (CY) 2007 National Health Expenditure Data, Centers for 
Medicare and Medicaid Services (CMS). This analysis includes CY 2007 unpublished data from CMS, National 
Health Statistics Group on Medicaid and Medicare expenditures for hospital-based nursing home and home 
health providers, and spending data for the Medicaid section 1915(c) home and community-based waivers. It 
does not include expenditures for the hospital-based nursing home and home health providers paid for by other 
sources, and certain expenditures similar in nature to the Medicaid 1915(c) waiver which are paid for by other 
sources (e.g., home modifications, housekeeping, etc.) 
Notes: The total percentages do not add to 100 due to rounding. 
Despite the large public commitment to financing care, most LTC is provided by informal 
sources—family and friends—who provide care without compensation. The total value (non-
economic as well as economic) of caregiving to older persons with disabilities can be substantial, 
and estimates of this value vary widely.9 
Public Sources of Financing for LTC 
A range of public programs cover LTC services for targeted populations across the country. 
Although Medicaid and Medicare are the largest payers with the widest reach, other public 
programs, such as the Older Americans Act (OAA), the Social Services Block Grant (SSBG), and 
the Veterans Health Administration (VHA), also finance services for specific populations. Each 
program has distinct eligibility criteria and, thus, distinct target populations, and each covers 
                                                
9 For information on caregiving, see CRS Report RL34123, Family Caregiving to the Older Population: Background, 
Federal Programs, and Issues for Congress, by Kirsten J. Colello. 
Congressional Research Service 
4 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
distinct services. The eligibility criteria and services offered under Medicare and the Veterans 
Health Administration are standardized across the country, yet access can differ across geographic 
areas. Other programs, such as Medicaid, the OAA programs, and SSBG have significantly 
different eligibility criteria and offer different benefits across states. As a result, some individuals 
may qualify for services in one state and not in a second state. 
The following briefly describes the general rules for coverage and the scope of eligibility for the 
public payers of LTC. Because state Medicaid programs are the largest public payers of LTC, the 
bulk of the information below describes these programs. 
Medicaid 
Medicaid coverage of LTC is intended to serve as a safety net for persons who cannot afford the 
cost of institutional care or home and community-based services. Medicaid is an entitlement 
program for many, but not all, categories of eligibles.10 The term “entitlement” has two meanings 
in this context. Individuals who meet state eligibility requirements are entitled to enroll in 
Medicaid. However, once enrolled, individuals are only entitled to those services according to the 
amount, duration, and scope criteria established by each state and for which they can demonstrate 
medical necessity (as determined by the state).11 For the purposes of LTC, medical necessity is 
often measured by level-of-care criteria, which measures individuals’ limitations in functional 
and/or cognitive capacity and the need for supervision. 
Eligibility 
Two groups of persons are eligible to receive Medicaid LTC services: (1) those who are already 
enrolled in Medicaid because they meet certain categorical and financial criteria and who 
demonstrate a medical need for the LTC services offered by the state (which may include, but are 
not limited to, the need for the level of services offered in an institution, such as a nursing home), 
and (2) those who qualify for Medicaid because they meet a states’ financial criteria and because 
they demonstrate the need for the level-of-care that is offered in a nursing home, hospital, or 
intermediate care facility for the mentally retarded (ICF/MR), as measured by a state-defined 
assessment.12 
Eligibility Criteria: Group One 
To enroll in Medicaid under the first group, persons must be considered categorically eligible and 
meet certain financial requirements. Persons who require LTC services generally fall under 
Medicaid’s categorically eligible categories of the elderly or disabled, as measured by the rules 
used by the Supplemental Security Income (SSI) program. Members of families with dependent 
children, and certain other pregnant women and children, may also be categorically eligible. In 
recent years, states may extend eligibility under Medicaid to additional groups with specific 
                                                
10 Some Medicaid waiver programs allow states to cap enrollment or institute waiting lists. As a result, individuals who 
meet the state-defined income and asset criteria could enroll and be determined eligible, but because current enrollment 
exceeds the program cap (as stipulated in the waiver terms and conditions), these individuals would not be permitted to 
receive services. 
11 42 CFR 440.230. 
12 Persons must also meet certain citizenship and state residence criteria. 
Congressional Research Service 
5 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
characteristics, including certain women with breast or cervical cancer and uninsured individuals 
with tuberculosis. 
Financial requirements place limits on the amount of income and assets individuals may possess 
to become eligible for Medicaid (often referred to as standards or thresholds). The specific 
income and asset thresholds that apply to each eligibility group are set through a combination of 
federal parameters and state definitions. Consequently, these standards vary considerably among 
states, and different standards apply to different population groups within a state. 
The major income pathways through which the categorically eligible elderly and people with 
disabilities often qualify include receipt of cash assistance from the SSI program (mandatory for 
many states, exceptions apply to so called 209(b) states);13 individuals with income that does not 
exceed 100% of the federal poverty level; and people with medical expenses that deplete their 
income to specified levels (i.e., spend-down groups, which are optional for many states and 
mandatory for some). Note that low-income elderly persons without LTC needs and younger 
persons with disabilities who do not need LTC services also qualify for Medicaid through some of 
these pathways. 
Financial standards also include asset tests that specify the maximum amount of countable assets 
a person may have to qualify; assets above these amounts make an individual ineligible for 
coverage. For the treatment of most types of assets, states generally follow SSI program rules. 
Under SSI rules, countable assets, such as funds in a savings account, stocks, or other equities, 
cannot exceed $2,000 for an individual and $3,000 for a couple.14 Special Medicaid rules apply to 
the treatment of an applicant’s primary place of residence. 
Eligibility Criteria: Group Two 
Medicaid law also allows states to enroll people with higher income into Medicaid and receive 
either institutional services, such as nursing home care, or a usually comprehensive benefit 
package of home and community-based services under section 1915(c) waiver programs, if they 
require the level of care that is offered in a nursing home, hospital, or ICF/MR. Under these rules, 
people may have income up to a specified level established by the state, but no greater than 300% 
of the maximum Supplemental Security Income (SSI) payment applicable to a person living at 
home. A number of states also allow persons to place income in excess of the special income level 
in an income-only trust, often referred to as a Miller Trust, and still qualify for Medicaid through 
the special income rule. Following the individual’s death, the state becomes the beneficiary of 
amounts in this trust. People who qualify under this eligibility pathway must also meet the state’s 
asset test, as described above. 
 
 
                                                
13 Under section 209(b) of the Social Security Act, some states apply more restrictive criteria to income, resources, 
and/or disability then is used by the SSI program and thus do not confer eligibility for all SSI beneficiaries. 
14 State practices for counting assets vary significantly. Under Section 1902(r)(2) of the Social Security Act, states are 
granted flexibility to modify these rules. This provision grants states permission to use more liberal standards for 
computing resources (and income) than are specified under SSI. Most states use Section 1902(r)(2) to ignore or 
disregard certain types or amounts of assets (and income), thereby extending Medicaid to individuals with assets too 
high to otherwise qualify under the specified rules for that eligibility pathway. 
Congressional Research Service 
6 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Other Requirements 
Persons who qualify for Medicaid through certain eligibility groups are required to apply their 
income above specified amounts toward the cost of their care. The amounts they may retain vary 
by setting. For example, Medicaid beneficiaries in a nursing home may retain a personal needs 
allowance. Persons receiving services in home and community-based settings may retain a 
maintenance needs allowance. All income amounts above these levels, including what may be 
available in a Miller Trust, must be applied toward the cost of their care.15 Special rules apply to 
the spouses of persons who seek Medicaid coverage for LTC services, allowing these spouses to 
retain higher amounts of income and assets than allowed under general Medicaid rules. 
Services 
States make available a broad range of institutional and home and community-based services to 
certain Medicaid enrollees. States are required to offer some of these services, while states are not 
required to offer others. For those services that are offered, states define them differently, using 
criteria that places limits on the amount, duration, and scope of the benefits. States may also 
restrict benefits to persons who demonstrate medical necessity for the benefit. For the most part, 
services that states make available are offered to all enrollees who demonstrate need; exceptions 
are made for certain long-term care services that are made available on a more limited basis to 
selected individuals. The following describes Medicaid’s LTC services: 
Mandatory Services: 
•  Nursing Facility Care. Federal law requires that Medicaid programs provide 
coverage for nursing facility care for beneficiaries aged 21 and over. Such care 
includes room and board, skilled nursing care and related services, rehabilitation, 
and health-related care. States may also cover therapeutic services, such as 
physical therapy, occupational therapy, and speech pathology and audiology 
services. 
•  Home Health Care Services. Federal law requires that states provide home 
health services to persons entitled to nursing facility coverage under a state’s 
Medicaid plan. Home health services must be medically necessary and 
authorized by a physician as part of a written care plan. Services covered vary by 
state and include intermittent or part-time nursing services, care by home health 
aides, and medical supplies and appliances for use in the home, among others. 
Optional Services: 
•  Personal Care Services. States have the option to cover personal care services 
for Medicaid beneficiaries who need assistance with ADLs and IADLs. The 
Medicaid statute defines personal care as services furnished to an individual at 
home or in another location (excluding institutional settings) that are either 
authorized by a physician, or at state option, under a plan of care. Services may 
include assistance with bathing, dressing, eating, toileting, personal hygiene, light 
housework, laundry, meal preparation, and grocery shopping, among others. 
                                                
15 For more detailed information on eligibility for LTC, see CRS Report RL33593, Medicaid Coverage for Long-Term 
Care: Eligibility, Asset Transfers, and Estate Recovery, by Julie Stone. 
Congressional Research Service 
7 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
States also have the option to cover self-directed personal care in which 
beneficiaries take on more responsibility for hiring and firing workers and 
establishing worker schedules and job responsibilities.16 
•  Intermediate Care Facilities for People with Mental Retardation (ICFs/MR). 
States have the option to provide coverage of institutional care to people with 
mental retardation and developmental disabilities in ICFs/MRs. Services include 
room and board and a wide range of specialized health and rehabilitative services 
to assist those with mental retardation and developmental disabilities to function 
at optimal levels.17 
•  Nursing Facility Services for Persons Under Age 21. States have the option to 
cover nursing facility care for persons under age 21. Such care includes room and 
board, skilled nursing care and related services, rehabilitation, and health-related 
care. States may also cover therapeutic services, such as physical therapy, 
occupational therapy, and speech pathology and audiology services. 
•  Inpatient Hospital Services and Nursing Facility Services for Persons Aged 
65 and Older in Institutions for Mental Diseases.18 States have the option to 
offer such inpatient and nursing facility services under the direction of a 
physician for the care and treatment of recipients with mental diseases. 
•  Case Management Services or Targeted Case Management. 19 States may 
offer care coordination services to assist individuals who reside in community 
settings or are transitioning to a community setting, in gaining access to needed 
medical, social, educational, and other services. Case Management also includes 
the development and implementation of a care plan and a comprehensive 
assessment and periodic reassessment of individual needs. 
•  Respiratory Care for Persons Who Are Ventilator-Dependent. 20 States may 
offer such services on a part-time basis in the recipient’s home by a respiratory 
therapist or other health care professional trained in respiratory therapy to 
individuals who are medically dependent on a ventilator for life support at least 
six hour per day, among other criteria. 
•  PACE (All-Inclusive Care for the Elderly). PACE programs combine Medicare 
and Medicaid services under one common administrative/clinical provider, often 
based at adult day or community centers, but also frequently include home 
service referrals. PACE beneficiaries receive all their health, medical, and social 
services through a network of health professionals contracted by the PACE 
program. In addition, an interdisciplinary team, including physicians, nurses, 
physical therapists, social workers, and other professionals, develop and monitor 
care plans for enrollees. 
                                                
16 For more detailed information on self-directed care, see archived CRS Report RL32219, Long-Term Care: 
Consumer-Directed Services Under Medicaid, by Karen Tritz. 
17 Some states cover persons in large facilities while increasingly more states, in an effort to expand the availability of 
home and community-based services for this population, are covering persons in small residential ICF/MRs. 
18 This benefit is not exclusively used for LTC purposes. 
19 This benefit is not exclusively used for LTC purposes. 
20 This benefit is not exclusively used for LTC purposes. 
Congressional Research Service 
8 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
•  Transportation..21 States have the option to cover expenses for transportation for 
an individual and his or her attendant, if necessary, and other related travel 
expenses determined necessary to secure medical examinations and treatment for 
a recipient. 
•  Home and Community-Based Services State Plan Option.22 This Medicaid 
option allows states to cover one or more home and community-based benefits 
for certain individuals with LTC needs. States are not required to make services 
available on a statewide basis. This benefit is limited to individuals whose 
incomes do not exceed 150% of the federal poverty level and who meet a state-
determined level of need criteria. If states cover this option, the needs-based 
criteria must be less stringent than that used for institutional care eligibility. 
States may limit the number of individuals served. Services are limited to 
homemaker/home health aide, personal care, adult day health, habilitation, 
respite care, day treatment or other partial hospitalization services, psycho-social 
rehabilitation services, and clinic services for individuals with chronic mental 
illness. The Secretary may not approve other state-requested services on a case-
by-case basis as possible under 1915(c) waivers (see below). 
•  Medicaid Home and Community-Based 1915(c) Waivers. Section 1915(c) of 
the Social Security Act gives states the option to extend a broad range of home 
and community-based services to selected populations of individuals with the 
level-of-care needs that would otherwise be offered in Medicaid-covered 
institutions, such as a nursing home, ICF/MR, or a hospital. Services that states 
may choose to offer under the section 1915(c) waiver include case management, 
homemaker/home health aide, personal care, adult day health, habilitation, 
respite care, rehabilitation, day treatment or other partial hospitalization services, 
psychosocial rehabilitation services, and clinic services (whether or not furnished 
in a facility) for individuals with chronic illness. States have flexibility to offer 
additional services if approved by the Secretary of the Department of Health and 
Human Services (DHHS). Section 1915(c) waivers may not cover room and 
board.23 To date, all states have chosen to make these waivers available to 
targeted populations. Waivers have been used to cover persons aged 65 or older 
who would otherwise meet the state’s eligibility criteria for nursing home care. 
They are also used to cover individuals with mental retardation and 
developmental disabilities, persons under age 65 with physical disabilities, 
persons with HIV/AIDS, persons who are medically fragile or technologically 
dependent, and persons with mental illness. States may limit access to these 
waiver programs by capping enrollment. As of 2007, states have extended section 
                                                
21 This benefit is not exclusively used for LTC purposes. 
22 For additional information, see CRS Report RS22448, Medicaid’s Home and Community-Based Services State Plan 
Option: Section 6086 of the Deficit Reduction Act, by Cliff Binder. 
23 Spending limitations are placed on states under the waivers’ statutory cost-effectiveness requirements. These 
requirements specify that the average annual expenditures per capita for waiver clients may not exceed average annual 
Medicaid spending on institutional residents (including expenditures on nursing home care, hospital care, physician 
services, and all other Medicaid spending for those persons). States may apply the per capita expenditure limit to each 
individual, or apply the limit as an aggregate cap across all waiver participants. (This calculation includes the costs of 
other Medicaid state plan services that the individual may be eligible for, such as inpatient hospital costs.) 
Congressional Research Service 
9 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
1915(c) waiver coverage to an estimated 1 million people (of all ages) 
nationwide.24 
Medicare 
Medicare also plays a role in paying for LTC servicers, although on a much more limited scale 
than the Medicaid program. Medicare finances care in skilled nursing facilities (SNFs) and home 
health services for persons who need skilled nursing care on a part-time or intermittent basis, or 
physical or speech therapies. These benefits also provide limited access to personal care services 
both in the home health setting and in the SNF for certain beneficiaries on a short-term basis. 
Significant confusion and debate has ensued among policy makers and stakeholders over the 
classification of these benefits into post-acute and/or LTC benefit categories. This is likely 
because Medicare and Medicaid cover stays in nursing homes25 as well as visits by home health 
agencies,26 yet the scope of their coverage is generally different. Unlike Medicaid, Medicare is 
not intended to be a primary funding source for LTC for persons who need assistance with 
chronic conditions. 
Home Health Services 
Medicare covers visits by a home health agency when such services are required because an 
individual is confined to his or her home and needs skilled nursing care on an intermittent basis or 
physical therapy or speech language therapy. After establishing such eligibility, the continuing 
need for occupational therapy services may extend the eligibility period. Covered services include 
part-time or intermittent nursing care, physical or occupational therapy or speech language 
pathology services, medical social services, home health aide services, medical supplies, and 
durable medical equipment. The services must be provided under a plan of care established by a 
physician, and the plan must be reviewed and updated by the physician at least every 60 days. As 
long as the beneficiary qualifies, home health services may be provided for an indefinite period of 
time. There is no beneficiary cost-sharing for home health services (though some other Part B 
services provided in connection with the visit, such as durable medical equipment, are subject to 
cost-sharing charges). 
Skilled Nursing Facility (SNF) Services 
This program covers up to 100 days of post-hospital care for persons needing continued skilled 
nursing or rehabilitation services on a daily basis. The SNF stay must be preceded by a hospital 
stay of at least three days, and the transfer to the SNF must occur within 30 days of the hospital 
                                                
24 Per conversation with CMS in January 2007. 
25 Medicare and Medicaid have different coverage rules regarding nursing homes. Whereas Medicaid covers long-term 
custodial care in a nursing home in every state, Medicare does not cover such care. 
26 The home health benefits under Medicare and Medicaid can serve persons for short or long duration, yet the goals of 
each program’s coverage are generally different (with some state expectations for Medicaid’s home health benefit). 
Medicare’s home health benefit is intended to cover post-acute rehabilitation after an injury or hospitalization. 
Depending on a state’s rules, Medicaid’s home health benefit can be used for this purpose as well. Medicare can also 
cover skilled care at home for a longer duration, with the approval of a physician (e.g., regular visits by a registered 
nurse for individuals who are ventilator-dependent or require the long-term use of a feeding tube.) Depending on a 
state’s rules, Medicaid may do this as well. Unlike Medicare, however, states may also use their home health benefit to 
cover long-term personal care services.  
Congressional Research Service 
10 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
discharge. The program does not cover nursing care if only custodial care is needed (e.g., when a 
person needs assistance with bathing, walking, or transferring from a bed to a chair). To be 
eligible for Medicare-covered SNF care, a physician must certify that the beneficiary needs daily 
skilled nursing care or other skilled rehabilitation services that are related to the hospitalization, 
and that these services, as a practical matter, can be provided only on an inpatient basis. There is 
no beneficiary cost-sharing for the first 20 days. Days 21-100 are subject to daily coinsurance 
charges ($133.50 in 2009).27 
Other Public Payers 
Federal and state governments also pay for LTC services through a variety of other programs and 
grants. Table 1 provides brief summaries of these programs. 
Table 1. Other Public Programs for LTC Services 
Program Services 
Eligibility  Administering 
Agency 
Older Americans Act 
Homemaker, chore and 
Targets older people who 
Administration on Aging 
transportation services, 
are in greatest social and 
congregate and home-
economic need, with 
delivered nutrition services,  particular attention to low-
and caregiver support 
income older individuals, 
services, among others. 
including those who are 
low-income minority, have 
limited English proficiency, 
reside in rural areas, and/or 
are at risk for institutional 
placement 
Veterans Health 
Includes nursing home  
VHA pays for nursing home  Department of Veterans 
Administration (VHA) 
care (community living 
(NH) care for veterans 
Affairs, Veterans Health 
centers, community nursing  who require NH care and 
Administration (VHA) 
homes, and state veterans 
have either at least a 70% 
homes), domiciliary care, 
service-connected 
medical, rehabilitative, 
disability, who are rated 
respite, and hospice 
60% (or more) service-
services; and home and 
connected and who are 
community based care in 
unemployable or are 
non-institutional settings, 
considered permanently 
such as home based 
disabled, or who need NH 
primary care, respite care, 
care for a service-related 
home hospice care, 
disability. If space and 
community residential care,  resources are available VA 
purchased skilled home 
may also provide VA NH 
care, adult day health care, 
care to other veterans who 
and homemaker/home 
do not fal  into the 
health aide services. 
categories listed above. 
Eligible persons may 
choose to receive their 
LTC services outside of 
NHs. All veterans enrolled 
in VA’s health care system 
are eligible for home and 
community based long-
                                                
27 For additional information, see CRS Report RL33921, Medicare’s Skilled Nursing Facility Payments, by Julie Stone. 
Congressional Research Service 
11 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Program Services 
Eligibility  Administering 
Agency 
term care services. Clinical 
indicators and conditions 
help determine the need 
for these services. 
Social Services Block 
Largely foster care services 
May include LTC 
Department of Health and 
Grant (SSBG) 
and protective services for 
populations, as defined by 
Human Services, 
children. May include 
each state. 
Administration for Children 
homemaker services, 
and Families 
congregate and home-
delivered meals, adult day 
care, and transportation, 
among others 
Department of Housing 
Services available to 
Residents of HUD-assisted 
Department of Housing 
and Urban Development  residents may include the 
housing who are either 
and Urban Development 
(HUD) Supportive 
arrangement of 
“elderly,” defined as 
(HUD) Offices of 
Services Programs - 
transportation, meal 
residents aged 62 or older, 
Multifamily Housing 
Multi-family Service 
services, housekeeping, 
or who meet the definition 
(Service Coordinators and 
Coordinators, Resident 
personal care, medication 
of “person with disabilities”  Congregate Housing) and 
Opportunities and Self-
management, and visits 
are eligible for services. 
Public and Indian Housing 
Sufficiency (ROSS) 
from nurses or other 
Not al  HUD-assisted 
(ROSS Service 
Service Coordinators, 
health care professionals. 
facilities, even those 
Coordinators) 
and Congregate 
Some HUD supportive 
dedicated to elderly 
Housinga 
services programs are 
residents and residents 
available to all residents, 
with disabilities, receive 
while others target those 
Service Coordinator or 
residents with limitations in  Congregate Housing funds. 
activities of daily living 
(ADLs). 
Developmental 
Supported living; case 
Selected persons with 
U.S. Department of Health 
Disabilities Assistance 
management; residential 
developmental disabilities. 
and Human Services, 
and Bill of Rights Act 
habilitation with 24 hour 
Administration for Children 
(DD Act) 
supervision; day habilitation 
and Families, 
services; transportation; 
Administration on 
specialized medical 
Developmental Disabilities 
equipment and supplies; 
skilled nursing; behavioral 
services; mental health 
services; dental and vision 
services, among others. 
State Vocational 
Counseling and guidance; 
Individuals with physical or 
US Department of 
Rehabilitation (VR) 
assessment; vocational 
mental impairment that 
Education, Office of Special 
Programs 
training; post-secondary 
results in a substantial 
Education and 
education; assistance with 
impediment to employment  Rehabilitation Services 
living expenses; personal 
and who require VR 
assistance services; and job 
services to achieve an 
placement. 
employment outcome. If a 
state is unable to serve all 
 
eligible individuals, priority 
must be given to servicing 
individuals with the most 
significant disabilities. 
Centers for Independent  An array of independent 
Individuals with disabilities 
US Department of 
Living (CILs) 
living services, such as 
and their informal 
Education, Office of Special 
information and referral; 
caregivers. 
Education and 
independent living skills 
Rehabilitation Services 
training; peer counseling; 
Congressional Research Service 
12 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Program Services 
Eligibility  Administering 
Agency 
and individual and systems 
advocacy. 
Assistive Technology 
Any item, piece of 
Certain states that improve  US Department of 
Act 
equipment, or product 
the provision of assistive 
Education, Office of Special 
system, whether acquired 
technology to individuals 
Education and 
commercially, modified, or 
with disabilities of all ages 
Rehabilitation Services 
customized, that is used to 
and their families. 
increase, maintain, or 
improve functional 
capabilities of individuals 
with disabilities. Can range 
from relatively low tech 
items, such as canes, 
walkers, magnifying glasses, 
or dressing aids to more 
high tech equipment such 
as computer screen 
readers or power 
wheelchairs.  
Notes: This list describes the major payers of LTC services but may not be comprehensive. 
a.  Many of these programs focus on assessment and referral to outside community service organizations. 
Other HUD programs directly support the linkage of supportive services for elderly households residing in 
HUD-assisted properties. 
Private Sources of Financing for LTC 
Individuals who do not meet the categorical, financial, and functional eligibility criteria for 
Medicaid and who do not qualify for services funded under other public programs either purchase 
private insurance or pay for LTC services directly out-of-pocket. Other private funds pay for LTC 
services on a relatively small scale. 
Private LTC Insurance 
Private LTC insurance (LTCI) provides financial protection for persons needing assistance with 
ADLs, IADLs, and cognitive impairments against the risk of the potentially high cost of LTC. 
LTCI policies pay benefits to cover certain LTC services for persons who have paid premiums 
and qualify to receive such care. Care in a variety of settings may be covered by a LTCI policy, 
including nursing homes or assisted living facilities, or the individual’s own home through home 
health. Policies may also cover respite care for caregivers, homemaker and chore services, and 
medical equipment, among others. 
LTCI policies may be sold to an individual or a group as part of an employer-sponsored policy. 
There are currently about 6-7 million policies active (often called “in-force”).28 The premiums 
charged for LTCI vary by age at purchase, with higher premiums charged to those purchasing at 
                                                
28 Estimates by Marc Cohen reported in Testimony Before the U.S. House Committee on Energy and Commerce 
Subcommittee on Oversight and Investigation: Long-Term Care Insurance: Are Consumers Protected for the Long-
Term? July 24, 2008.  
Congressional Research Service 
13 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
older ages. This age differential reflects the higher risk of needing LTC services at advanced ages. 
One study has estimated that over two-thirds of individuals who turn age 65 will require LTC 
services at some point before they die.29 
The private LTCI market has undergone significant changes in the past three decades. The 
employer-sponsored market has grown as a share of total LTCI sales and the overall market has 
become more concentrated in terms of the number of companies selling the product. Further, a 
number of newer product lines have been introduced that combine LTCI with other retirement 
and life-insurance products.30 
Out-of-Pocket Spending 
Out-of-pocket expenditures include both direct payments of LTC services, and deductibles and 
co-payments for services that are primarily paid for by another source. Direct payments for LTC 
services could include private pay nursing facilities or home health services if no other third 
parties cover such services. Out-of-pocket payments may also include, however, copayments 
under Medicare’s limited LTC benefit. They also include copayments of any private health 
insurance plans that provide limited short-term skilled nursing and home health care coverage. 
Individuals who do not have insurance that covers LTC services, who have exhausted their 
private health insurance benefits, and/or LTCI, and who do not qualify or have access to a 
sufficient number of services under public programs and continue to need assistance with LTC 
must pay the full cost of care directly out-of-pocket or forgo care. 
The magnitude of out-of-pocket costs will depend on the setting, intensity (including the skill 
level of the provider), and the duration of LTC services. For example, the setting of care can 
include care provided in one’s own home, in a community-residential care setting such as an 
assisted living facility, or in an institutional setting such as a nursing home. For those receiving 
care at home, the cost will also vary depending on the skill level of the paid caregiver. In 2009, 
the cost of personal unskilled care at home (such as bathing, dressing, and transferring) was $19 
an hour, whereas skilled care from a visiting nurse was $46 an hour.31 In addition, the annual cost 
of care will also vary by intensity and duration of care. Assuming care is provided three hours a 
day, seven days a week, the annual cost for unskilled care would be about $20,750 in 2009. 
Assisted living facilities that provide hands-on personal care for those who are not able to live by 
themselves (but do not yet require constant care provided by a nursing home) cost on average 
$33,900 annually in 2009. Nursing home care, on the other hand, generally costs more, in that it 
provides LTC assistance 24 hours a day and includes the cost of room and board. In 2009, the 
annual cost of a nursing home stay was $66,886 for a semi-private room and $74,208 for a private 
room.32 These estimates are national averages and can vary widely by geographic region. 
                                                
29 Kemper, P. , H.L. Komisar, and L. Alecxih, “Long-Term Care Over An Uncertain Future: What Can Future Retirees 
Expect?” Inquiry 42, Winter 2005-2006. 
30 See CRS Report R40601, Factors Affecting the Demand for Long-Term Care Insurance: Issues for Congress , by 
Janemarie Mulvey. 
31 Genworth Financial 2009 Cost of Care Survey, April 2009. 
32 Ibid. 
Congressional Research Service 
14 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
Other Private Funds 
Other private funds generally include philanthropic support, which may be direct from 
individuals or obtained through philanthropic fund-raising organizations such as the United Way. 
Support may also be obtained from foundations or corporations. 
LTC Issues for Congress 
Concern about the way LTC is financed and delivered has drawn congressional attention for 
several decades. Exacerbating this concern is the aging of the U.S. population, which will put 
increased strains on federal and state budgets that pay a significant share of the formal LTC 
service provided in the United States. The first wave of the baby boom generation (born between 
1946-1964 and approximately 80 million in size) is beginning to retire. This generation is 
expected to live longer than previous generations, increasing their likelihood of needing LTC 
services. In addition, advances in medicine and technology have enabled younger persons with 
disabilities to live longer and more independent lives with the assistance of publicly funded 
services. Whereas these demographic changes are positive, they also have important implications 
for the financing and delivery of LTC services in the future. The following discusses some of the 
major LTC issues affecting our current system. 
Barriers to Public and Private Coverage 
The number of persons who can access publicly funded LTC services varies greatly across the 
country. For example, an individual may qualify for a comprehensive service package of 
Medicaid LTC services in a one state, qualify for a more limited package in a second state, and 
not qualify at all in a third state. Further, the reach of other public programs that cover LTC is 
often limited by eligibility restrictions, funding, and the number of services available. So, 
although public programs have successfully met the LTC needs for many, significant unmet need 
persists. 
Relying on the private LTCI, to date, also has limitations. After 15 years of strong growth in the 
market, the share of the older population with a private LTC insurance policy is relatively small. 
Currently, less than 10% of the population aged 50 and older owns a LTC insurance policy.33 One 
of the key factors affecting the demand for private LTC insurance is cost. Higher costs reflect 
individuals purchasing at older ages, increased preferences for more comprehensive benefit 
packages (including inflation adjustments and longer durations of coverage), and improved 
claims data used to more accurately price policies. Additional barriers to purchasing a policy, 
even among those who can afford them, include the complexity of the product and that some are 
not able to purchase a policy because of the insurers’ underwriting requirements that may 
disqualify them because of pre-existing conditions.34 
                                                
33 Feder, Judith, Harriet L. Komisar and Robert B. Friedland, 2007, “Long-Term Care Financing: Policy Options for 
the Future,” Washington, DC: Georgetown University. 
34 See CRS Report R40601, Factors Affecting the Demand for Long-Term Care Insurance: Issues for Congress , by 
Janemarie Mulvey. 
Congressional Research Service 
15 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
In the absence of public financing or private LTC insurance, the cost of paying for LTC directly 
out-of-pocket can often exceed an individual’s or family’s annual income and, in some cases, 
their savings. Many must rely on family or friends, or forgo care altogether. 
Disagreement among Members of Congress persists regarding the appropriate roles of the public 
and private sectors in the financing of LTC. Whereas some Members of Congress assert that 
public programs should be expanded to shield greater numbers of individuals and families from 
financial hardship, others assert that the private sector should play a larger role; others want to see 
a larger role for both. 
Strain on Federal, State, and Local Budgets 
Growing costs of both medical and LTC services combined with increasing enrollment have put 
increased financial pressures on both federal and state programs. From a federal perspective, the 
key source of funds for Medicare skilled nursing facility benefits is the Medicare Hospital 
Insurance (HI) Part A Trust Fund. Recent projections show that this trust fund will become 
insolvent in 2017, two years earlier than was projected in 2008.35 
Medicaid, funded jointly by the federal and state governments, will also face fiscal pressures. 
Under current law, spending on Medicaid is expected to substantially outpace the rate of growth 
in the U.S. economy over the next decade.36 In CBO’s baseline, Medicaid’s growth rate is 
expected to increase annually at about 7% annually from 2010 through 2019.37 State spending for 
Medicaid is expected to increase by 4.4% in the governors’ recommended budgets for FY2009—
more than four times the rate of growth in other parts of the budget.38 At the same, slow growth in 
the economy and declining housing values have reduced state revenues. The Government 
Accountability Office had projected that under current policies state and local governments would 
begin to face growing fiscal challenges even before the recent downturn had materialized.39 
Better Coordinating Care Across Medicaid, Medicare, and Other 
Public Programs 
About 8.8 million Medicare beneficiaries are simultaneously enrolled in Medicaid.40 These 
individuals receive most of their acute care services through Medicare, including home health and 
skilled nursing facility care when appropriate, and their non-Medicare-covered acute care and 
long-term care benefits under Medicaid. These dually enrolled individuals and other Medicaid 
                                                
35 See 2009 Hospital Insurance (HI) and Supplementary Medical Insurance (SMI) Trustees’ Report and CRS Report 
RS20173, Medicare: Financing the Part A Hospital Insurance Program, by Patricia A. Davis. 
36 Centers for Medicare and Medicaid Services, Press Release, Medicaid Spending Projected to Rise Much Faster Than 
the Economy, October 17, 2008.  
37  Congressional Budget Office, The Budget and Economic Outlook: Fiscal Years 2009 to 2019, January 2009. 
38 National Governors Association, The Fiscal Survey of States, June 2008.  
39 Government Accountability Office, State and Local Governments: Growing Fiscal Challenges Will Emerge During 
the Next 10 Years, January 2008.  
40 Holahan J, D Miller and D. Rousseau, “Dual Eligibles: Medicaid Enrollment and Spending for Medicare 
Beneficiaries in 2005,” Kaiser Commission on Medicaid and the Uninsured, Washington, DC, February 2009. 
Congressional Research Service 
16 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
enrollees may also be eligible to receive LTC services paid for by other public programs, such as 
the Older Americans Act.  
People enrolled in or eligible for services from multiple programs may face challenges in 
determining which program will cover which needed services. This sometimes leads to the 
fragmentation or duplication of services delivered, over- or under-utilization of needed services, 
missed opportunities to reduce dependency on institutional services, the maximization of payment 
from another payer (e.g., Medicaid maximizing Medicare’s home health payments before 
Medicaid will pay), and inappropriate emergency room visits, among others.  
Congress, states, and the Department of Health and Human Services have explored various ways 
to improve the integration of service delivery systems across multiple programs. Various 
integrated managed care models have been established across the country. Still, a substantial 
unmet need remains. Better coordination across payers may improve efficiency, result in cost-
savings, and even improve beneficiary satisfaction for those persons whose health care needs can 
be met through a more seamless process. 
Better Coordinating Care Across Provider Settings 
Significant public expense is dedicated to persons with LTC needs as they transition across LTC 
settings (e.g., from a nursing facility to a community-based residence to receive an array of home 
and community-based services) and between LTC and acute- and post-acute-care settings (e.g., 
from a nursing facility to a hospital to a nursing facility). Each public program makes separate 
payments to individual providers for covered services, even though these providers may be 
delivering care to an individual for the same or related conditions. This approach to provider 
payments encourages each provider to attempt to maximize its revenue while an individual is 
under its care and does not encourage the management of an individual’s care as he or she moves 
across provider settings.  
Although some care coordination is funded within the LTC system (e.g., Medicaid pays for care 
coordination under section 1915(c) home and community-based waivers and under some 
Medicaid state plans), significant unmet needs exists. Some policy makers and others have 
suggested that certain payment reforms could provide financial incentives to individual providers, 
provider networks, and/or interdisciplinary teams of trained individuals (e.g., doctors, nurses, 
therapists, social workers, nutritionists) to manage episodes of care across provider settings for 
individuals.  
Medicaid Spending Still Dominated by Institutional Care 
Medicaid spending for LTC continues to be dominated by institutional care rather than home and 
community-based services, despite consumer preferences for the latter. This spending trend finds 
its origins in a Medicaid statute that has required states to make nursing facility care available to 
certain Medicaid enrollees since the program’s establishment in 1965, while giving states the 
option to extend a comprehensive package of home and community-based services as an 
alternative to such care. In more recent years, however, Congress has amended the Medicaid 
statute to expand the options available to states to provide access to home and community-based 
services under Medicaid. Today, the combination of waiver authority and Medicaid state plan 
optional benefits allows states considerable flexibility to shift this spending bias away from 
institutional care and toward home and community-based services. Although some states have 
Congressional Research Service 
17 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
done just this, many have not. Concern that improving access to home and community-based 
services would add additional pressures on already strained state budgets is a major reason why 
some states have not been more aggressive. Pressure to maintain current levels of institutional 
spending, a lack of coordination among state agencies responsible for administering services, and 
limitations in the availability of home and community-based providers are among some of the 
barriers states may face in accomplishing this objective. 
Navigating the Current LTC System Is Complex 
The financing and delivery system is composed of multiple services funded through a myriad of 
private, federal, and state programs. Accessing and arranging formal care services, delivered 
through multiple providers, can be confusing for individuals and their families, particularly for 
vulnerable populations and those with significant physical and/or mental disabilities. This results 
in fragmented and uncoordinated care for many beneficiaries attempting to navigate the system. 
Some policy makers have expressed interest in streamlining this system so as to improve access 
to needed care among the elderly and younger persons with disabilities. 
Limited Supply of the LTC Workforce 
Shortages in the supply of qualified LTC workers pose a significant challenge to the nation’s 
ability to meet the growing demand for LTC services and to meet quality standards and/or 
expectations for this care. Currently, many nursing homes experience high worker turnover rates 
and difficulties attracting qualified staff to care for the current supply of residents. Among home 
and community-based providers, finding qualified staff is also difficult, particularly in rural areas, 
where the supply of workers is often limited. Developing methods to increase the supply of staff 
and to adequately train them in both settings so as to meet the growing demand for LTC is a 
major challenge facing Congress and the nation. 
Limited Access to Affordable Housing 
The limited funding available for affordable and accessible housing has left many individuals 
with LTC needs with difficulties in securing affordable and accessible housing in the community. 
Medicaid pays exclusively for services and does not cover room and board for community-based 
living. Although some federally funded housing programs finance some LTC services, such as 
meals and transportation, significant unmet need exists for some low-income populations. As the 
demand for assistance with LTC services grows, so too will pressure on federal and state 
governments and on Congress to identify and determine the appropriate amount of payment for a 
mix of community-based services and housing assistance. 
Guaranteeing Quality Can Be Challenging 
Federal and state governments continue to struggle to identify ways to ensure that the services 
LTC beneficiaries receive, whether in institutions or home and community-based settings, 
guarantee beneficiaries’ safety, promote their highest level of functioning and independence, and 
are free from abuse or harm. Under the current system, no assurance can be provided that public 
dollars will purchase services of high quality. For example, despite decades of effort on behalf of 
federal and state governments to improve the quality of care delivered in nursing homes, reports 
of quality violations are prevalent. To date, little is known about the quality of services delivered 
Congressional Research Service 
18 
Long-Term Care (LTC): Financing Overview and Issues for Congress 
 
in home and community-based settings under Medicaid and other publicly funded programs, 
partly because these services are delivered on a one-on-one basis in private homes and partly 
because advanced monitoring systems are still not in place in many states. Some work is currently 
being done to develop quality assurance systems in the Medicaid program in home and 
community-based settings. It is likely, however, that monitoring and improving quality will 
continue to be a challenge for federal and state governments as well as for the Congress in years 
to come. 
 
Author Contact Information 
 
Julie Stone 
   
Specialist in Health Care Financing 
jstone@crs.loc.gov, 7-1386 
 
 
 
Acknowledgments 
Janemarie Mulvey contributed to parts of this report, and Trisha Davis provided comments. 
 
Congressional Research Service 
19